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The Randolph B. Capone Cleft Lip and Palate Program

Cleft Team

6535 N. Charles St.
Pavilion North, Suite 250
Towson , MD 21204

Tulip Parking Garage

(443) 849-6050
Monday 9:00am - 4:30pm
Tuesday 9:00am - 4:30pm
Wednesday 9:00am - 4:30pm
Thursday 9:00am - 4:30pm
Friday 9:00am - 4:30pm

Interdisciplinary care to children and adults born with cleft lip, cleft palate, and other craniofacial conditions

Our team's involvement with patients and their families can begin as early as pregnancy, when some clefts can be diagnosed. A geneticist and genetic counselor will provide information to the parents. The family has the option of scheduling a consultation with a facial plastic reconstructive surgeon. At that consultation the surgeon will describe the types of surgery, explain the anticipated time frame for surgery and answer any other questions parents may have.

A team of craniofacial experts is the best means of providing acute medical/surgical management and long-term follow-up care. Our geneticists can provide both the immediate family and the extended family with information about the cause and recurrence risks for the patient's diagnosis. Our team meets ten times a year to follow our patients on a regular basis.

Cleft Team Coordinator, Stephanie Boblooch, can be reached at 443-849-6050 to answer your questions and schedule appointments; including prenatal appointments.

Our Services

The Randolph B. Capone Cleft Lip and Palate Team provides interdisciplinary medical expertise to families of children with cleft lip, cleft palate, and other cranofacial conditions. Examples of these include:

  • Cleft Lip/Cleft Palate
  • Pierre-Robin sequence
  • Microtia
  • Microphthalmia
  • Facial Asymmetry
  • Other, Rarer Conditions

The team also provides consultation services for newborns with craniofacial differences. After your child's birth, several members of the team (genetics, facial plastic reconstructive surgery, oral maxillofacial surgery, speech/feeding, and lactation, and social work/coordinator) meet with the family in the hospital. Subsequently, a meeting of all team members is arranged to address your child's specific needs. Follow-up letters are sent to the family and your child's primary care provider. The purpose of the team is to provide services from the newborn period through early adulthood, including:

  • Initial Diagnosis
  • Treatment including surgery and/or therapy
  • Maintenance of body systems
  • Psychosocial Needs
  • Future Reproductive Needs

What our team does

When a baby with a cleft is born at GBMC, the team provides a bedside consultation before the family takes their newborn home. Our feeding specialists assist parents, teaching them how to use special bottles and nipples if necessary, to ensure that the baby is getting enough nutrition. Team members from the Harvey Institute for Human Genetics, lactation, and facial plastic reconstructive surgery departments visit the newborn and the parents during their stay. The team social worker/coordinator also visits during this time.

The family will return for an appointment with the team within two months after discharge. At that appointment, the family will remain with their baby as he or she is examined by each team member. When the results of the examinations come in, they will be explained to the family and a summary of recommendations will be sent to the patient's pediatrician. The team follows patients throughout early childhood and into adolescence to continue providing needed care as each patient grows and develops.

While the Team's involvement with patients can begin as early as pregnancy, it should continue throughout the patients' life. We recommend seeing patients every five years after age 18 and possibly more frequently during child bearing age.

Links

The American Academy of Facial Plastic and Reconstructive Surgery
www.aafprs.org

The American Cleft Palate and Craniofacial Association website also includes resources for familites:
acpacares.org

Pediatric Speech-Swallowing and Voice:
www.gbmc.org/pediatricspeech

Dr. Patrick Byrne's practice:
my.clevelandclinic.org/staff/26747-patrick-byrne

Dr. Jason Nellis' practice:
https://www.hopkinsmedicine.org/otolaryngology/specialty_areas/facial-plastic-reconstructive/index.html

Dr. John Caccamese's practice
https://www.umomsa.com/meet-us/meet-john-f-caccamese-jr-dmd-md-facs/

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